Malakai was born Sep 24, 2008. At four weeks old, multiple tests determined he had a rare liver disease called Biliary Atresia. BA is when the bile duct between the liver and the small intestine is blocked or absent. He had his first surgery Nov 6 to temporarily fix the problem. During a five week hospital stay for ascites, Malakai was put on the transplant list on Mar 20. He recieved his "Gift of Life" May 12, 2009 at Children's Hospital in St. Louis.
Monday, May 25, 2009
I decided to put some new pictures up for your viewing pleasure. He's really starting to look great! We can SEE the difference just a pound or two can make on such a tiny body!
This is seriously what we ordered him from the "Dining On Call" This was HIS food...LOL We weren't sure what he would eat so we got a variety...his favorite? The spaghetti and mashed potatoes!
A pic of him after eating...Mommy hadn't cleaned him up yet! Love those sparkly eyes and sweet smile!!
Love this one!
He loves to play with styrofoam cups! I'm not sure why...not just any cup will do! And his mohawk was back!! Hopefully after he's not laying on his back so much I can keep it that way! I love his little mohawk!
Our lovely accomodations...Makena sleeps in one, Josh in the other, and Malakai and I share his hospital bed. Comfortable? Not in the least!