Malakai was born Sep 24, 2008. At four weeks old, multiple tests determined he had a rare liver disease called Biliary Atresia. BA is when the bile duct between the liver and the small intestine is blocked or absent. He had his first surgery Nov 6 to temporarily fix the problem. During a five week hospital stay for ascites, Malakai was put on the transplant list on Mar 20. He recieved his "Gift of Life" May 12, 2009 at Children's Hospital in St. Louis.
Sunday, May 17, 2009
He's on the right track...keep it up Malakai!
A lot has happened in the last few days, it's incredible. He lost another drainage tube today, his last one! Watching the surgeon pull it out (he did it bedside) was awful. That tube looked 12 inches long! And once it was out, he lost alot of fluid...it just wouldn't stop coming out! He was finally able to put the glue on it and get it to stop. So he has one IV in his wrist, his Broviac, and his feeding tube...that's it! We gave him a little bit of a bath this morning to clean up the obvious spots. He looks so much better today. He's acting very crabby, which I can only imagine how he's feeling. He has every right to be crabby! He's breastfed some, and actually has taken a bottle. As much as I am into breastfeeding, if we can get him to take a bottle, I will almost be relieved. This pumping and storing and only getting 1-2 ounces is getting to be pretty tough on me. Whatever is best for him, I will certainly do. Last night he was given pain medicine orally and threw it up. So she came back with more and he threw that up. So he's back to Morphine, but hopefully he won't need it much longer. It makes him lethargic. Keep praying for us. We're hoping we aren't in the hospital too terribly long. I can't wait to bring him home!
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment