Malakai was born Sep 24, 2008. At four weeks old, multiple tests determined he had a rare liver disease called Biliary Atresia. BA is when the bile duct between the liver and the small intestine is blocked or absent. He had his first surgery Nov 6 to temporarily fix the problem. During a five week hospital stay for ascites, Malakai was put on the transplant list on Mar 20. He recieved his "Gift of Life" May 12, 2009 at Children's Hospital in St. Louis.
Monday, May 18, 2009
Headed to bed
I am heading to bed, hoping for a good night of sleep...or at least better than the last two nights have been. Michelle, our transplant nurse practitioner came in today and told us that as soon as Malakai smiles, she'll sign our discharge paperwork! LOL Everyone knows how smiley he is and so they know he'll be feeling well enough to go home when he smiles! She said "You have to smile at ME, not mommy and daddy and I will send you home!" Now home means St Louis, not Indiana. But I can't wait!!! Hoping in less than a week we will all be together. Keep praying for us!
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