Malakai was born Sep 24, 2008. At four weeks old, multiple tests determined he had a rare liver disease called Biliary Atresia. BA is when the bile duct between the liver and the small intestine is blocked or absent. He had his first surgery Nov 6 to temporarily fix the problem. During a five week hospital stay for ascites, Malakai was put on the transplant list on Mar 20. He recieved his "Gift of Life" May 12, 2009 at Children's Hospital in St. Louis.
Tuesday, May 26, 2009
I'm happy to say...
His cultures are NEGATIVE!! They will continue to run his three antibiotics because they're 10 day courses, but she mentioned possibly letting us go home and run them ourselves. We'll be here a few more days I'm sure, just to watch him. But I'm hopeful by the end of the week we'll be home (well, St. Louis home). We've stopped his bolus feeds during the day, so he's just breastfeeding and eating table foods. I truly believe we are on our way to being tube-less!!! He's been steady around 5.8 kg ( 12 1/2 lbs) for the last 3 days.
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that is AWESOME news! continuing to pray...
ReplyDeleteOutstanding news! The kid's a fighter!
ReplyDeleteRegards,
Albert
The Rasch Outdoor Chronicles.