Malakai was born Sep 24, 2008. At four weeks old, multiple tests determined he had a rare liver disease called Biliary Atresia. BA is when the bile duct between the liver and the small intestine is blocked or absent. He had his first surgery Nov 6 to temporarily fix the problem. During a five week hospital stay for ascites, Malakai was put on the transplant list on Mar 20. He recieved his "Gift of Life" May 12, 2009 at Children's Hospital in St. Louis.
Tuesday, June 16, 2009
Our journey in St. Louis is almost over...
These pictures are in reverse order newest pictures first...Blogger does that for some reason...I could fix it, but trying to nurse a baby and keep a toddler from going crazy is more important :)
Here's a picture of his beautiful scar...Thanks Dr. Anderson and Dr. Lowell, it looks awesome!
Can you see the chub on his legs? Awesome !!
My beautiful little boy...ice cream on his face and all!
It's getting harder and harder to get a decent picture of Makena. She's on-the-go all the time!
Makena pushing Malakai in her doll stroller, doesn't he look thrilled?
Riding Kena's bike
Eating Lasagna, his absolute favorite food!
This one was taken while he was still in the hospital, notice his feet crossed??
Meeting his cousin Addison for the first time, I think he loves her already :)
Munching on a bagel
We are going home TOMORROW! It's been a long 8 months, but I am so excited to be bringing home a healthy baby boy! His ultrasound on Friday came back completely normal. I totally expected it would. He's still having a few issues with his Tacro levels being a little low. When we left the hospital, his dosage was 0.4, they increased it to 1.0, 1.6, 2.0, 2.4 and now it's to 3.0. He lost a few ounces when we went in yesterday, but he hadn't eaten breakfast yet and he's no longer on the tube feeds at night. So I can only guess that is normal. He was 13 lb 6.8 oz.
Cindy (Josh's mom) came in last night and she was amazed at how he looks. Pictures don't do him any justice. You have to SEE him to see the big difference. He's starting to sit up on his own, and he's able to stand with support. It's incredible!
Josh's friend, Derek, is putting together a work day at our house for those who want to help out, but can't financially. We've had our home on the market for 6 months now. We've had a lot of showings, but no offers yet. We've had so much going on in our lives, fixing up the house has been the last thing on our minds. I think they're doing it this Saturday for anyone who would like to help out. Anyone interested can contact him at Derek@petermanhvac.com.