Monday, June 22, 2009

Finally an update!

Sorry it's been sooo long since an update! We got home and our home phone and internet were both shut off since we were gone so long. We couldn't get the internet back up until we had a running phone line, and they couldn't make it out here until today!

Other than running to the store once, and out to ice cream with my family I haven't left the house. I really haven't minded too much though. We've had alot of visitors, which has been very nice. If you're thinking about visiting, we'd love to see you :) Malakai can't be in public for another month or so to keep the risk of him getting an infection low. After he's off his steroids, he'll be normal and able to go out. Thankfully he can go outside...hopefully we'll be planning a trip to the zoo or something fun soon!

Malakai is doing AWESOME! He is doing things I wouldn't have thought he'd be doing until a month from now. He's rolling over, sitting up for a minute or two unassisted, he's standing with support, he's still eating like a pro, he's waving bye-bye (my personal favorite) and new today...he's drinking juice from a bottle! And last night he slept a 4 1/2 hour stretch...that's the longest he's gone in months! I am just tickled with how well he's doing. He has a few appointments coming up, one with his primary pediatrician, and one with the team at Riley. His docs in STL wanted him to be seen close to home so the docs here would know his "baseline" Then we will have a home health nurse come out once a week and draw his blood levels. Other than that, we won't have to go back to STL until next month!

We had a work day at the house on Saturday. THANK YOU to everyone who came out and helped. It was such a blessing to us to have the help. We got the outside of our home almost completely done (landscaping, power washing, weeding, etc)! Then Sunday, with the help of some great people, we cleaned out our basement. That was an accumulation of about 6 years of stuff! So glad it's done! Those were the things we'd wanted to do for awhile now, but with Malakai being ill, it just didn't happen. I want to say a special thank you to Derek and Candy. They stepped up and helped us out like family would do. We are so grateful to have you as friends! God bless you and your family!! I also want to thank everyone who's given us financial help. We thank you from the bottom of our hearts. God bless you all!

We had a reporter come out today to do a piece in the local paper about Malakai. It'll be interesting to see how that turns out! It was difficult to tell his story, start to finish, to someone who knew nothing about him...I mean where exactly do you start and what information is important? Hopefully I portrayed his story accurately!

That's all I can think of right now. I have a lot of cleaning to do while the kids are sleeping. Now that our internet is up and running, hopefully I can keep this updated a little better!

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