Malakai was born Sep 24, 2008. At four weeks old, multiple tests determined he had a rare liver disease called Biliary Atresia. BA is when the bile duct between the liver and the small intestine is blocked or absent. He had his first surgery Nov 6 to temporarily fix the problem. During a five week hospital stay for ascites, Malakai was put on the transplant list on Mar 20. He recieved his "Gift of Life" May 12, 2009 at Children's Hospital in St. Louis.
Thursday, July 16, 2009
No more steroid!!!
Penny (his transplant coordinator) called today and said all of his levels were GREAT and he no longer needs his Prednisone!!!! He HATED his prednisone, it went down super hard and was very hard for him to swallow! So that's exciting, plus it is one less medication each day and one step closer to being a "normal baby" He can now go in public places, which is something I took for granted before. Although, I have saved alot of money because I can't just run to the store!! Great news :)
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