The Cruse Kids - Our journey living with biliary atresia and liver transplant

Malakai was born Sep 24, 2008. At four weeks old, multiple tests determined he had a rare liver disease called Biliary Atresia. BA is when the bile duct between the liver and the small intestine is blocked or absent. He had his first surgery Nov 6 to temporarily fix the problem. During a five week hospital stay for ascites, Malakai was put on the transplant list on Mar 20. He recieved his "Gift of Life" May 12, 2009 at Children's Hospital in St. Louis.

Tuesday, March 2, 2010

Sending my letter out today

I'm sending the letter to the donor family today. I'm nervous and excited. I hope to hear back from them, but I also realize there is a good possibility that I won't. I truly hope they know how much I deeply care for their family and how appreciative I am that they gave Malakai his life back. He is doing well from a liver stand point. His new liver is very happy and healthy. His numbers are stable and continue to be so. I will post the letter I wrote, but I haven't decided when. I want them to read it before I post it on here. I continue to pray for peace and comfort for them. I hope they're doing well.