Thursday, June 28, 2012

Donate Life Memorial in St. Louis

I am unofficially the worst blogger, EVER. But, I guess it's kind of a good thing we have nothing major to report on Malakai's health status. We recently went to St Louis for his annual clinic check up and his ultrasound was normal and his liver levels were all great. His levels were low on iron so he's now on iron drops, which taste nasty. Poor guy, he's such a trooper though. We spent a few days out in St. Louis where we visited the Mid America Transplant Services memorial for Donate Life. They were building it when we were living out in St. Louis for his liver transplant in 2009. It was just finished up the week we left. It's within walking distance of the hotel we stay in while we are out there.  It was neat to watch them playing in the water fountains. Makena asked on the way there if we could all pray for Sherae, our donor. She had her head bowed and eyes closed, saying thanks to God for Sherae and for saving her brothers life. It was one of the proudest moments I have had as a mom. She did it all on her own and wasn't even aware that I was taking her picture. Pure innocence.



  1. How sweet! I'm a BA mom too and I think a memorial is wonderful. I love how your little one wanted to say a prayer. God bless these kiddos :)

  2. Hi Malkai
    My name is Jenna. You are a brave courageous fighter, You are a special miracle from god, a gift from above, earthly angel, a smilen hero. You are full of happiness, life, smiles, joy, fun,love, and spunk.

    I was born with a rare life threatening disease, and have 14 other medical conditions, and developmental delays.

    I wrote this poem
    Each of us are Special
    Each of us different,
    No one is the same
    Each of are us are unique in our own way,
    Those of us who have challenges, we smile through our day.
    Those who of us who have challenges, we smile through our day.
    It doesn't matter what others say
    we are special anyway.
    What is forty feet and sings? the school chior